Endometriosis Research Funding: 2019 Applications Now Being Accepted


Endometriosis Research Funding
2019 Application Cycle Now Open

Central to our mission is supporting educational and research efforts that seek to benefit individuals with endometriosis both at present and in future generations. To that end, the ERC invites eligible recipients seeking small grants to supplement their education or research endeavor budgets to apply for funding. A maximum award to any single project will be limited to $2,500. At this time, funding is limited only to candidates in the United States. Applications will be accepted on a rolling basis through the hard deadline of 5:00pm EST on Friday, May 31, 2019.

Please read the following very carefully, as it contains all the information necessary to apply.

United States-based Applicants from the Following Sectors are Encouraged to Apply:

  • Accredited Medical, Nursing & Allied Health Schools seeking to conduct meaningful research or implement a didactic program on endometriosis;
  • Accredited non-pharmaceutical organizations and companies conducting studies on endometriosis;
  • Individual applicants seeking to conduct endometriosis research;
  • Institutions of higher education seeking to implement or execute an endometriosis research or didactic program;
  • School district health programs (6-12) seeking to implement and conduct a school-based or district-wide endometriosis education effort; and/or
  • F-MIG candidates seeking support for enrollment in a high volume Surgical Fellowship Program, which features a demonstrated commitment specifically to the Laparoscopic Excision of Endometriosis and also includes a research component, will be considered.

Of note: grants can be used towards Institutional Review Board (IRB) fees related to an endometriosis-specific study. Event sponsorships will not be considered under this Request for Proposals (RFP). If you would like the ERC to consider supporting your awareness and education event, please contact us at AskERC@endocenter.org with a detailed description of the event and amount requested.

Although not limited in scope and all applications will be considered, priority consideration will be given to applicants focusing on the following areas (in no particular order):

  • Molecular and genetic mechanisms of endometriosis
  • Reducing time to diagnosis and improving access to care for patients of all ages, backgrounds, races and socioeconomic status
  • Components of a multidisciplinary care program for endometriosis
  • Pain mechanisms in endometriosis
  • Endometriosis & Cancer
  • Potential biomarkers in endometriosis
  • Adolescent endometriosis
  • Gender diverse, transgender and non-binary people with endometriosis
  • Qualified applicants seeking to implement a robust, accurate and authoritative endometriosis education campaign within their school or credentialed organization
  • Extrapelvic and non-classical endometriosis
  • Controlled trials and testing of novel, non-hormonal medical and/or other therapies for endometriosis
  • Investigation into and demonstration of the efficacy of Laparoscopic Excision for the surgical treatment of endometriosis

We seek to support bold, novel ideas that may advance the disease for all people affected and which are backed by dedicated, strong leadership. Commitment to and an accurate understanding of endometriosis and those living with the condition is required.

If You are Approved for an ERC Grant, You Accept the Following Terms:

  • Recipients are expected to provide the ERC with quarterly updates on the project, from launch through closure.
  • Recipients are expected to provide the ERC with a final summary of the endeavor; if data is to be submitted to a scientific journal, a copy of the submission will be accepted as a final summary.
  • Recipients are expected to acknowledge the ERC’s support on all materials, including but not limited to project websites, press releases, disclosures, submissions to scientific publications and more.
  • Recipients may apply grant towards IRB costs, but are solely responsible for obtaining and maintaining IRB approval.
  • Recipients are expected to immediately notify the ERC if the research effort or educational endeavor is subject to unexpected close-out or early termination for any reason.
  • You and your project title may, at any time, be referenced or otherwise mentioned and/or promoted in any format by the ERC, including but not limited to press mentions or printed materials.
  • Submission of application indicates recipient’s acceptance of the foregoing terms.

Preparing Your Application (Please Read Thoroughly):
You may wish to copy and paste the following into your application document to ensure you have not missed any required fields

Applications must be typed, single spaced and Times New Roman 12. Applications must be received in .PDF format and submitted as one single document to ERCResearch@endocenter.org. Please submit only one copy. Please address all of the following questions and attach any requisite documentation. Write “n/a” where applicable and provide explanation. Omission of any required information will result in rejection of application.

  • Name & Title of Applicant (this is the individual who will serve as liaison to the ERC throughout the duration of project)
  • Applicant’s Complete Contact Information (name of facility or organization, mailing address, phone number, website and email address)
  • Organization Name, Brief Overview & Exemption Status (note n/a if not applicable)
  • If Individual Applicant, Please Provide Mission Statement (note n/a if not applicable)
  • Do you have, or are you connected to someone with, endometriosis? Explain.
  • Name(s) of all Personnel Involved in Project (including but not limited to Principal Investigator, department head(s), Board of Directors, key staff members or volunteers and/or others as applicable; biography or CV is required for each)
  • If Applying for F-MIGS Fellowship Support, Please Include the Following (all other applicants may mark ‘n/a’):
    • Name of Center or Practice where Fellowship will be undertaken
    • Name, address and phone number for Program Director and Supervising Physician at the facility
    • Number of endometriosis-specific cases treated exclusively or near-exclusively via Laparoscopic Excision annually at the facility
    • Copy of Medical License
    • Publications, conferences and/or other professional opportunities wherein the facility’s staff has presented or published research, as well as a list of your own publications/presentations
  • Diversity Policy (minority representation on the project faculty, number of patient representatives involved in the research endeavor, etc.; if solo applicant, please note and write n/a)
  • Grant Request Summary, to Include all of the Following:
    • Project name or title
    • IRB approval number, if required and/or already received
    • Statement of Purpose:
      • why is there a need for this project?
      • why is your endeavor unique among the endometriosis education and research landscape?
      • how do you intend to meet your objectives and goals?
      • who will benefit from your works?
    • Milestones including anticipated start and end dates
    • Physical location where project will be undertaken (university, school, corporate setting, independent researcher, etc.)
    • Description of ERC priority area(s) described above that this endeavor aligns with (minimum of one required)
    • Journal(s) you intend to submit to once endeavor has been completed, if applicable
    • Total project budget
    • Disclosures:
      • please provide a thorough accounting of any and all foundations, corporations, person(s) and/or other sources of funding you have received or are soliciting in support of this project, and the amounts received
    • How will your grant be applied? i.e. towards IRB fees, to support an F-MIGS Fellowship, used as general operating support, etc.; be specific
    • Full copies of any current research cited in support of your application (not to exceed 3 scholarly articles)
    • Requested amount (a maximum of $2,500 will be granted to each approved applicant)

Following Your Submission:

As a reminder, applications must be typed, single spaced, Times New Roman 12 and contain all of the required elements above (or ‘n/a’ with an explanation). Do not include more than 3 academic articles in support of your request. If your submission exceeds more than 3 citations, please send only the 3 most current and relevant articles. Applications must be received in .PDF format and submitted as one single document to ERCResearch@endocenter.org. Deadline is May 31, 2019 by 5:00pm EST. Please submit only one copy of your application and supporting materials.

Once your application is received, it will be logged into our system and undergo initial review. If it passes this initial round, it will then be sent on for secondary review by a larger volunteer panel comprised of healthcare providers (e.g. MD, RN, DNP, DPT etc.), academic researchers (PhD, MSc and others), patient advocates and other specific stakeholders with demonstrated expertise and established professional ties to the disease. You will receive emailed notification advising you as to the outcome and final decision of your request within six weeks from the date of receipt.

Decisions to provide grants are made based on merit, research priorities and availability of funds. If your endeavor does not get funded, you are encouraged to resubmit your application during the next cycle.

Thank you for your commitment to advancing endometriosis.

Lupron: A poor diagnostic tool


In my work with The Endometriosis Network Canada, I have heard many women say that their doctors told them that if their pain does not go away on Lupron, then the pain must not be from endometriosis. Lupron never has and never will be an effective tool for diagnosing whether pain is due to endometriosis. Not only does Lupron have the potential for significant side effects, which alone should abrogate its use as a diagnostic tool, but it also is not at all effective at diagnosing endometriosis and distinguishing it from other conditions.

Lupron is a synthetic version of a naturally occurring hormone called gonadotropin-releasing hormone, and its action is actually stronger than the naturally occurring GnRH. It is a long-acting medication that initially stimulates hormones in the pituitary gland that control the menstrual cycle, and then suppresses these functions. It is typically given as a 1 month or 3 month injection.


Read more of the original article By: Mar 14, 2016 by 

Is life long pain a given?

Acute pain in a woman stomach

Nancy Petersen, RN: While I do not have command of the full literature on pain and its complex underlying issues, I want to address endometriosis generated pain. We often see women in our large Facebook groups resigned to a life of chronic severe pain.

These groups of women number in the 10’s of thousands on the various boards I monitor and counsel. The common denominator is most still have active, inadequately treated endometriosis after experiencing all most all gynecology has to offer. Something is definitely amiss. When a 100,000 patients a week or so are asking for help, for relief, for understanding we have to ask are we really doing enough to relieve pelvic pain?

I think in the presence of endometriosis, given my 30 years of watching the field and advocating/educating women with endometriosis, we should start with the basics. Without a doubt, many of the patients I have seen since the mid 1980’s have had dramatic relief of their endometriosis associated pain, relief which persists today as I still hear from many from time to time. The key seems to be meticulous removal of disease. Key factors seem to be the surgeons understanding of what endo looks like through all of its evolution in color appearance and the statistical distribution of disease and how that correlates with symptoms. Since endo is a multi-factoral disease, some times multiple specialties are required to adequately address that.

We see some centers utilizing teams of surgeons to see this group of patients, so the individual surgeons become highly skilled through constant exposure to complex cases. For instance a colo-rectal surgeon with repeated exposure to endometriosis of the intestinal tract will learn very quickly that colostomies and ileostomies are largely, (almost always ) unnecessary. Yet if a patient is exposed to a colorectal surgeon with out that team experience, often they are told they will need such an intervention. In any event, lesions on or near the bowel need to be addressed surgically if pain relief is one of the goals as medication does not “clean endo up.” Often patients have been told substantial disease was left on the bowel because it was inoperable. In most cases this would not fit with the experience of those who see this disease every day.

Endo what?


It’s Time for a New Normal.

A normal where women with endometriosis know the facts and can make empowered choices. A normal that doesn’t involve multiple doctors, surgeries, misdiagnoses and years of pain.

The only film of its kind, Endo What presents solid, accurate information straight from the experts. They answer the questions you have, but aren’t able to ask.

They answer the questions you never even knew to ask.

Just one Caveat. (Spoiler alert)

There’s no quick fix. No easy answer. But, it is possible. You can live a full, vibrant life with endometriosis. You may have endo, but endo does not have you.

It’s time to make a real & lasting change in the narrative of this disease. It’s time to stop the vicious cycle of misinformation. The new normal starts now. It starts here with you.

Take this film & take control of your life.

Every Girl. Every Woman.

An estimated 176 million women around the world have endometriosis. Our goal is to reach every one of them.

You can help make that happen. When you buy the film, , choose to donate a DVD to a school or library. You say where or we’ll pick from our list, then send it on your behalf.

What is Endometriosis?