Endometriosis Research Funding: 2019 Applications Now Being Accepted

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Endometriosis Research Funding
2019 Application Cycle Now Open

Central to our mission is supporting educational and research efforts that seek to benefit individuals with endometriosis both at present and in future generations. To that end, the ERC invites eligible recipients seeking small grants to supplement their education or research endeavor budgets to apply for funding. A maximum award to any single project will be limited to $2,500. At this time, funding is limited only to candidates in the United States. Applications will be accepted on a rolling basis through the hard deadline of 5:00pm EST on Friday, May 31, 2019.

Please read the following very carefully, as it contains all the information necessary to apply.

United States-based Applicants from the Following Sectors are Encouraged to Apply:

  • Accredited Medical, Nursing & Allied Health Schools seeking to conduct meaningful research or implement a didactic program on endometriosis;
  • Accredited non-pharmaceutical organizations and companies conducting studies on endometriosis;
  • Individual applicants seeking to conduct endometriosis research;
  • Institutions of higher education seeking to implement or execute an endometriosis research or didactic program;
  • School district health programs (6-12) seeking to implement and conduct a school-based or district-wide endometriosis education effort; and/or
  • F-MIG candidates seeking support for enrollment in a high volume Surgical Fellowship Program, which features a demonstrated commitment specifically to the Laparoscopic Excision of Endometriosis and also includes a research component, will be considered.

Of note: grants can be used towards Institutional Review Board (IRB) fees related to an endometriosis-specific study. Event sponsorships will not be considered under this Request for Proposals (RFP). If you would like the ERC to consider supporting your awareness and education event, please contact us at AskERC@endocenter.org with a detailed description of the event and amount requested.

Although not limited in scope and all applications will be considered, priority consideration will be given to applicants focusing on the following areas (in no particular order):

  • Molecular and genetic mechanisms of endometriosis
  • Reducing time to diagnosis and improving access to care for patients of all ages, backgrounds, races and socioeconomic status
  • Components of a multidisciplinary care program for endometriosis
  • Pain mechanisms in endometriosis
  • Endometriosis & Cancer
  • Potential biomarkers in endometriosis
  • Adolescent endometriosis
  • Gender diverse, transgender and non-binary people with endometriosis
  • Qualified applicants seeking to implement a robust, accurate and authoritative endometriosis education campaign within their school or credentialed organization
  • Extrapelvic and non-classical endometriosis
  • Controlled trials and testing of novel, non-hormonal medical and/or other therapies for endometriosis
  • Investigation into and demonstration of the efficacy of Laparoscopic Excision for the surgical treatment of endometriosis

We seek to support bold, novel ideas that may advance the disease for all people affected and which are backed by dedicated, strong leadership. Commitment to and an accurate understanding of endometriosis and those living with the condition is required.

If You are Approved for an ERC Grant, You Accept the Following Terms:

  • Recipients are expected to provide the ERC with quarterly updates on the project, from launch through closure.
  • Recipients are expected to provide the ERC with a final summary of the endeavor; if data is to be submitted to a scientific journal, a copy of the submission will be accepted as a final summary.
  • Recipients are expected to acknowledge the ERC’s support on all materials, including but not limited to project websites, press releases, disclosures, submissions to scientific publications and more.
  • Recipients may apply grant towards IRB costs, but are solely responsible for obtaining and maintaining IRB approval.
  • Recipients are expected to immediately notify the ERC if the research effort or educational endeavor is subject to unexpected close-out or early termination for any reason.
  • You and your project title may, at any time, be referenced or otherwise mentioned and/or promoted in any format by the ERC, including but not limited to press mentions or printed materials.
  • Submission of application indicates recipient’s acceptance of the foregoing terms.

Preparing Your Application (Please Read Thoroughly):
You may wish to copy and paste the following into your application document to ensure you have not missed any required fields

Applications must be typed, single spaced and Times New Roman 12. Applications must be received in .PDF format and submitted as one single document to ERCResearch@endocenter.org. Please submit only one copy. Please address all of the following questions and attach any requisite documentation. Write “n/a” where applicable and provide explanation. Omission of any required information will result in rejection of application.

  • Name & Title of Applicant (this is the individual who will serve as liaison to the ERC throughout the duration of project)
  • Applicant’s Complete Contact Information (name of facility or organization, mailing address, phone number, website and email address)
  • Organization Name, Brief Overview & Exemption Status (note n/a if not applicable)
  • If Individual Applicant, Please Provide Mission Statement (note n/a if not applicable)
  • Do you have, or are you connected to someone with, endometriosis? Explain.
  • Name(s) of all Personnel Involved in Project (including but not limited to Principal Investigator, department head(s), Board of Directors, key staff members or volunteers and/or others as applicable; biography or CV is required for each)
  • If Applying for F-MIGS Fellowship Support, Please Include the Following (all other applicants may mark ‘n/a’):
    • Name of Center or Practice where Fellowship will be undertaken
    • Name, address and phone number for Program Director and Supervising Physician at the facility
    • Number of endometriosis-specific cases treated exclusively or near-exclusively via Laparoscopic Excision annually at the facility
    • Copy of Medical License
    • Publications, conferences and/or other professional opportunities wherein the facility’s staff has presented or published research, as well as a list of your own publications/presentations
  • Diversity Policy (minority representation on the project faculty, number of patient representatives involved in the research endeavor, etc.; if solo applicant, please note and write n/a)
  • Grant Request Summary, to Include all of the Following:
    • Project name or title
    • IRB approval number, if required and/or already received
    • Statement of Purpose:
      • why is there a need for this project?
      • why is your endeavor unique among the endometriosis education and research landscape?
      • how do you intend to meet your objectives and goals?
      • who will benefit from your works?
    • Milestones including anticipated start and end dates
    • Physical location where project will be undertaken (university, school, corporate setting, independent researcher, etc.)
    • Description of ERC priority area(s) described above that this endeavor aligns with (minimum of one required)
    • Journal(s) you intend to submit to once endeavor has been completed, if applicable
    • Total project budget
    • Disclosures:
      • please provide a thorough accounting of any and all foundations, corporations, person(s) and/or other sources of funding you have received or are soliciting in support of this project, and the amounts received
    • How will your grant be applied? i.e. towards IRB fees, to support an F-MIGS Fellowship, used as general operating support, etc.; be specific
    • Full copies of any current research cited in support of your application (not to exceed 3 scholarly articles)
    • Requested amount (a maximum of $2,500 will be granted to each approved applicant)

Following Your Submission:

As a reminder, applications must be typed, single spaced, Times New Roman 12 and contain all of the required elements above (or ‘n/a’ with an explanation). Do not include more than 3 academic articles in support of your request. If your submission exceeds more than 3 citations, please send only the 3 most current and relevant articles. Applications must be received in .PDF format and submitted as one single document to ERCResearch@endocenter.org. Deadline is May 31, 2019 by 5:00pm EST. Please submit only one copy of your application and supporting materials.

Once your application is received, it will be logged into our system and undergo initial review. If it passes this initial round, it will then be sent on for secondary review by a larger volunteer panel comprised of healthcare providers (e.g. MD, RN, DNP, DPT etc.), academic researchers (PhD, MSc and others), patient advocates and other specific stakeholders with demonstrated expertise and established professional ties to the disease. You will receive emailed notification advising you as to the outcome and final decision of your request within six weeks from the date of receipt.

Decisions to provide grants are made based on merit, research priorities and availability of funds. If your endeavor does not get funded, you are encouraged to resubmit your application during the next cycle.

Thank you for your commitment to advancing endometriosis.

Endometriosis to Receive Federal Research Funding from Dept of Defense for First Time in History

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Thanks to Shannon Cohn and the Endo What? Coalition working tirelessly with Senator Elizabeth Warren and Senator Orrin Hatch on a groundbreaking, bi-partisan initiative to create widespread awareness and meaningful change for the millions of people living with endometriosis, endometriosis will now receive research funding from the Dept. of Defense for the first time in history! As Endo What? explains, the DOD has a CDMRP (Congressionally Directed Medical Research Program) to pursue novel approaches to biomedical research that affects the American public, the military and Congress. As endometriosis affects all three of those population segments (directly or indirectly), it has been added to the program now for the first time. To learn more, be sure to visit www.EndoWhat.org and sign the Open Letter asking policy makers to address this urgent issue! Be sure to also watch the video announcement here: https://www.facebook.com/EndoWhat/videos/824992241038287/?t=0

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ERC Thanks Amanda, End Endo Charity Team & Har-Bro

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The ERC sends a HUGE THANK YOU to Amanda, Har-Bro, Inc. and their charity team, End Endo, for their generous contribution and all their awareness, education and fundraising efforts! Please take a moment to read their story…

Har-Bro, Inc. & the End Endo Charity Team

In early 2017, Har-Bro announced their Har-Bro Cares 2017 Team Challenge, which encouraged employees to form teams, chose a charity of their choice, write a proposal, and then work towards set goals for their chosen charity. Every team working to help out a charity received a donation to give to their chosen charity.

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The End Endo Charity Team was led by Amanda S. who lost her mom in April 2016. Amanda wrote:

“My mom was only 47 years old. Growing up as an only child to a single mother, we were always very close. Losing her has by far been the worst experience of my life, and I always wonder what else could have been done to prevent it.

My mom first noticed signs of Endometriosis in her teen years, but was not properly diagnosed until her late 30’s, due to the lack of knowledge and research of this disease. At that point, she already had stage IV Endometriosis. My mom suffered from chronic pain daily. Some days were better than others, some she could not even make it out of bed. The only treatment was to use a heating pad and take pain medication, and most of the time that didn’t even take away the pain. My mom also had multiple miscarriages due to complications of Endometriosis. After a few years of being on pain medications, with no relief, she found a doctor who suggested surgery to clean up the Endometriosis. She felt great for about a year, until it grew back. She ended up having 7 surgeries, including a complete hysterectomy. Each surgery caused more adhesions. None of these surgeries cured her from Endometriosis, as it always made its way back.

I saw first hand how this disease drastically diminished my mom’s quality of life, and it was devastating. This disease not only affected my mom, but myself and our family and friends as well. Losing her has forever changed our lives. Although I find peace knowing she is no longer suffering, every day I wish she could have been cured of Endometriosis. The fact that some doctors my mom saw didn’t have much knowledge on Endometriosis proves that there is not enough awareness of this life changing disease. Knowing that so many women suffer from this disease is heartbreaking and it’s time more people are aware and more research is done to find a cure!”

The End Endo Charity team shared with us how they organized and/or participated in the following as part of their awareness, education and fundraising efforts:

“First, the End Endo Charity team held a Super Bowl pool and a raffle. Then, in March 2017, our charity team participated in the Los Angeles EndoMarch. For our effort in participating and raising awareness, Har-Bro made an additional donation.

In addition, we hosted a charity breakfast at work. Once a quarter, Har-Bro hosts a company breakfast for all employees. Instead of them hosting, we offered to prepare the breakfast using the funds they would normally buy breakfast with. We were able to save money by buying everything and cooking it all ourselves, which rewarded us additional funds to donate to the ERC.

It has been such a pleasure raising money and awareness for something that means so much to us. We hope one day, women of all ages with Endometriosis are cured and no longer living in pain!”

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