ERC Launches Book Fundraiser

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The Endometriosis Research Center (ERC) has hundreds of brand new copies of Royal Di-lemma, which were donated to assist with fundraising efforts. Please help us raise $ while enjoying a fun, engaging, quick read. All proceeds will be 100% received by the ERC.

Royal Di-lemma makes a great gift. A donation is requested (suggested $1 – $5); all donation offers are being accepted.

Royal Di-lemma is a 357 page hardcover mystery novel. It is printed on the finest quality text paper and a brilliantly designed dust cover with gold embossing and film lamination to protect it for a lifetime. A ribbon page marker is also included as a special touch, allowing readers to easily bookmark their page.

Royal Di-lemma is a gripping story about an English Princess who is killed in a Paris tunnel. Was it an accident or murder? This a fast moving, thrilling story of romance between a People’s Princess and the son of a powerful, wealthy man determined to gain British citizenship – at any cost. The book will keep you reading all the way to the end when a shocking twist in the tale is sure not to disappoint.

The book received 5-stars. One reviewer wrote, “Royal Di-lemma is a roller coaster thrill ride through streets, on water, and in the air. You may think you know what is coming as you turn the page, but what you read will surprise you.” Another reviewer said, “It is a great, engaging quick read.” A Colorado reader wrote, “What a spoof on the firm (Royal Family)! I thank you for the entertaining reading.” Another reviewer simply said, “I love it.”

Books will be shipped via USPS Media Mail; shipping costs will apply to all orders, which is approximately $3.09 per book. If you are interested in purchasing multiple copies or have questions, please email the ERC at askerc@endocenter.org; please put “BOOK” as the subject heading.

Thank you for helping us raise funds for Endometriosis education and awareness!

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Lupron: A poor diagnostic tool

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In my work with The Endometriosis Network Canada, I have heard many women say that their doctors told them that if their pain does not go away on Lupron, then the pain must not be from endometriosis. Lupron never has and never will be an effective tool for diagnosing whether pain is due to endometriosis. Not only does Lupron have the potential for significant side effects, which alone should abrogate its use as a diagnostic tool, but it also is not at all effective at diagnosing endometriosis and distinguishing it from other conditions.

Lupron is a synthetic version of a naturally occurring hormone called gonadotropin-releasing hormone, and its action is actually stronger than the naturally occurring GnRH. It is a long-acting medication that initially stimulates hormones in the pituitary gland that control the menstrual cycle, and then suppresses these functions. It is typically given as a 1 month or 3 month injection.

 

Read more of the original article By: Mar 14, 2016 by 

Is life long pain a given?

Acute pain in a woman stomach

Nancy Petersen, RN: While I do not have command of the full literature on pain and its complex underlying issues, I want to address endometriosis generated pain. We often see women in our large Facebook groups resigned to a life of chronic severe pain.

These groups of women number in the 10’s of thousands on the various boards I monitor and counsel. The common denominator is most still have active, inadequately treated endometriosis after experiencing all most all gynecology has to offer. Something is definitely amiss. When a 100,000 patients a week or so are asking for help, for relief, for understanding we have to ask are we really doing enough to relieve pelvic pain?

I think in the presence of endometriosis, given my 30 years of watching the field and advocating/educating women with endometriosis, we should start with the basics. Without a doubt, many of the patients I have seen since the mid 1980’s have had dramatic relief of their endometriosis associated pain, relief which persists today as I still hear from many from time to time. The key seems to be meticulous removal of disease. Key factors seem to be the surgeons understanding of what endo looks like through all of its evolution in color appearance and the statistical distribution of disease and how that correlates with symptoms. Since endo is a multi-factoral disease, some times multiple specialties are required to adequately address that.

We see some centers utilizing teams of surgeons to see this group of patients, so the individual surgeons become highly skilled through constant exposure to complex cases. For instance a colo-rectal surgeon with repeated exposure to endometriosis of the intestinal tract will learn very quickly that colostomies and ileostomies are largely, (almost always ) unnecessary. Yet if a patient is exposed to a colorectal surgeon with out that team experience, often they are told they will need such an intervention. In any event, lesions on or near the bowel need to be addressed surgically if pain relief is one of the goals as medication does not “clean endo up.” Often patients have been told substantial disease was left on the bowel because it was inoperable. In most cases this would not fit with the experience of those who see this disease every day.

Endo what?

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It’s Time for a New Normal.

A normal where women with endometriosis know the facts and can make empowered choices. A normal that doesn’t involve multiple doctors, surgeries, misdiagnoses and years of pain.

The only film of its kind, Endo What presents solid, accurate information straight from the experts. They answer the questions you have, but aren’t able to ask.

They answer the questions you never even knew to ask.

Just one Caveat. (Spoiler alert)

There’s no quick fix. No easy answer. But, it is possible. You can live a full, vibrant life with endometriosis. You may have endo, but endo does not have you.

It’s time to make a real & lasting change in the narrative of this disease. It’s time to stop the vicious cycle of misinformation. The new normal starts now. It starts here with you.

Take this film & take control of your life.

Every Girl. Every Woman.

An estimated 176 million women around the world have endometriosis. Our goal is to reach every one of them.

You can help make that happen. When you buy the film, , choose to donate a DVD to a school or library. You say where or we’ll pick from our list, then send it on your behalf.

What is Endometriosis?