Consumer Advocate Again Serves on Scientific Peer Review Panel of the Congressionally Directed Medical Research Program for the Department of Defense

Katie Boyce Donahue

For Immediate Release

SCIENTIFIC PEER REVIEW OF CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS’ PEER REVIEWED MEDICAL RESEARCH PROGRAM FOR THE DEPARTMENT OF DEFENSE

The Congressionally Directed Medical Research Programs’ (CDMRP), Peer Reviewed Medical Research Program (PRMRP) consumer advocate recently participated again in the evaluation of research applications submitted to the PRMRP. Katie Boyce was nominated for participation in the program once more by The Endometriosis Research Center. As a consumer reviewer, Katie was a full voting member, along with prominent scientists, at meetings to help determine how the $370 million appropriated by Congress for Fiscal Year 2022 will be spent on research.

Consumer reviewers are asked to represent the collective view of patients by preparing comments on the impact of the research on issues such as diagnosis, treatment, and quality of life. When commenting on serving as a consumer reviewer, Katie Boyce said that “It was an honor to be invited back to serve for another year. Being a representative for the patient community is a phenomenal opportunity to have a voice at the table for patients who otherwise do not when it comes to reviewing proposed research.”

Consumer advocates and scientists have worked together in this unique partnership to evaluate the merit of research applications since FY99. COL Sarah B. Goldman, Director of the CDMRP, expressed her appreciation for the consumer advocates’ hard work. “Integrating consumer perspectives into our decision-making process brings energy and focus to our research programs. Patients, caregivers, family members, and advocates help us keep our efforts centered around what is truly important to those impacted. We very much value this critical input from our consumers who help ensure that CDMRP’s work remains critical and relevant,” she said.

Researchers applying to the PRMRP propose to promote research to improve the health, well-being, and care of all Military Service Members, Veterans, and the American Public. More information about the CDMRP PRMRP is available at the website:
https://cdmrp.army.mil/prmrp/default

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Media Contact:
Hayley Gula, Public Affairs Specialist
Congressionally Directed Medical Research Programs
U.S. Army Medical Research and Development Command
1077 Patchel St, Fort Detrick, MD 21702
Office Phone: 301-619-4342

Endometriosis linked to higher stroke risk, NIH-funded study suggests

Credit: Shutterstock

Individuals with endometriosis may have a higher risk for stroke, suggests the National Institutes of Health. A recent analysis found that compared to those without the disease, those who had been diagnosed with endometriosis had a 34% higher risk. Study authors concluded that ‘physicians should consider counseling patients with endometriosis about their risk for stroke and other cardiovascular conditions.’ For complete coverage, see:

https://www.nichd.nih.gov/newsroom/news/072722-endometriosis-stroke

Rep Jillian Gilchrest pushes legislation to address endometriosis

Image (c) Rep Jillian Gilchrest

Congratulations to Rep. Gilchrest on the passage of her legislation to improve the lives of those with endometriosis. Her Endometriosis Working Group efforts have resulted in the passage of Connecticut House Bill 5278, “An Act Concerning Intimate Examinations, Continuing Medical Education In Screening For Endometriosis And The Effects Of Systemic Racism, Bias, Racial Disparities, And Experiences Of Transgender And Gender Diverse Persons On Patient Diagnosis, Care And Treatment, The Establishment Of An Endometriosis Data And Biorepository Program, And The Breast And Cervical Cancer Early Detection And Treatment Referral Program.”

Endometriosis Research to Receive Funding from the US Dept of Defense Congressionally Directed Medical Research Program

Thanks to Shannon Cohn and the Endo What? Coalition working tirelessly with Senator Elizabeth Warren and Senator Orrin Hatch on a groundbreaking, bi-partisan initiative to create widespread awareness and meaningful change for the millions of people living with endometriosis, endometriosis will now receive research funding from the Dept. of Defense for the first time in history! As Endo What? explains, the DOD has a CDMRP (Congressionally Directed Medical Research Program) to pursue novel approaches to biomedical research that affects the American public, the military and Congress. As endometriosis affects all three of those population segments (directly or indirectly), it has been added to the program now for the first time. To learn more, be sure to visit www.EndoWhat.org and sign the Open Letter asking policy makers to address this urgent issue! Be sure to also watch the video announcement here: https://www.facebook.com/EndoWhat/videos/824992241038287/?t=0

UPDATE: The ERC is thrilled to announce that EndoWhat? has once again secured millions in funding from the DOD CDMRP for endometriosis research. We were pleased to be represented on the scientific panels reviewing applications. Congratulations to Shannon and her team!

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